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Dec 2013
4:43pm, 15 Dec 2013
205 posts
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Two Silver Swifts
Would quite possibly affect the tests Curly, but you could always order them and hold off on taking them until afterwards. Maybe speak to the docs about when to take them?
Only just saw the thread, hoping my Utmost buddy feels better soon - it must be awful to feel so exhausted 
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Dec 2013
11:12am, 16 Dec 2013
2,238 posts
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Curly45
We aren't even in the same league anymore waaa
Feeling bot to tired today but have loads of nerve pain. Have decided to hold off with supplementation until after the test on the off chance and then go for 1000mg a day. If it works and I can absorb at least some of it that would be great for over Xmas as work is really busy and I want to be able to at least go for a run on Xmas day!
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Dec 2013
10:23am, 19 Dec 2013
2,244 posts
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Curly45
Right had the pernicious anemia blood test today, results should be back on Mon. If positive then I can have a shot then I think.
Got my level of B12 which is 179 (200-900 is the reference).
Also awaiting the neuro who was supposed to be looking at my scans yesterday. Hopefully can see him tonight.
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Dec 2013
12:50pm, 19 Dec 2013
50,043 posts
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plodding hippo
Gosh, I didnt think people still bothered with tests for intrinsic factor
I just treat the B12 deficiency if its low
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Dec 2013
1:23pm, 19 Dec 2013
1,669 posts
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Carpathius
Curly, this all sounds awful, and your GPs terrible
PH, would there be any point in B12 supplements if intrinsic factor is low and therefore will have trouble absorbing the supplements?
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Dec 2013
3:01pm, 19 Dec 2013
2,246 posts
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Curly45
I should also be referred to a haematologist I think... I will mention it on Monday. Definitely going to change gps as soon as I feel better too.
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Dec 2013
3:26pm, 19 Dec 2013
29,300 posts
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Hills of Death (HOD)
Big Hugs and XXX Curly
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Dec 2013
10:25pm, 27 Dec 2013
2,250 posts
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Curly45
Oh for goodness sake. Am still waiting for blood test results. Told today to ring back monday.
Was looking into buying b12 myself to inject but its not recommended for loading doses. Why is it so hard to get anything done? Seriously, I must be doing something wrong, but I just cant figure out what it is. Sigh.
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Dec 2013
10:32pm, 27 Dec 2013
50,046 posts
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plodding hippo
I only do B12 by injection
Intrinsic factor i dont bother checking
Curly, this is poop
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Dec 2013
10:42pm, 27 Dec 2013
2,251 posts
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Curly45
Its recommended by health professionals but the pernicious anaemia society dont recommend self injection for the first lot due to the risk of hypokalemia... no idea how that works but not going to question it.
I'm wondering about a private gp and if they would do it and how do you find one?
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