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Chronic illness

6 watchers
Feb 2021
3:57pm, 13 Feb 2021
84 posts
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GetOutTheDoor
Hiya, good luck with figuring out how to safely train pixiemumma.
While I know nothing about your conditions I know that when I've had a bout of inflammation (auto-immune nonsense) I need to take getting fit again very slowly. Kind of a case of doing what I can and being kind to myself when I need rest. Take care and welcome.
Feb 2021
3:21pm, 14 Feb 2021
1,674 posts
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Snoot
Hi Pixiemumma, my wife and son both have EDS, son also has POTS. He used to do a lot of Tae Kwon Do until the contact caused too many problems. He's done less intense martial arts but never really got in to running, used to walk everywhere at quite a pace when he was at Uni though!

He finds keeping fit through strength training with light weights helps control his condition.

I'd say when you start out to take it really easy and not stray too far from what you consider safe places in case the POTS catches you out!

Good luck with your training.
Jun 2022
11:20am, 12 Jun 2022
26 posts
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EuanB
Hi Pixiemumma, I have Parkinson's - was diagnosed in 2019. I've found that experimentation is key, but, obviously your challenges are quite different to mine!

I tend to do run/walk intervals, 30 seconds each, and sometimes run backwards to keep me focused. I listen to music through a pair of aftershokz earphones (the bone conducting ones) which I never used to do. Now the marathon is done, I'm probably going to stop timing my runs and keep it slow but get out three times a week.

I think another goal is to get out on the bike at least once a week and see what that's like.

Either way, I think key is to listen to your body and know when to stop.

I see this thread is quite old so hopefully you've found a good exercise regime and are doing well.
Jun 2022
9:21am, 13 Jun 2022
1,659 posts
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Steve NordRunner
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