Chronic illness

1 lurker | 6 watchers

Pixiemumma Feb 2021 1:29am, 11 Feb 2021 First-time poster!!	0 Pixiemumma Hi there, I am a new user looking for support and social interaction with others trying to get fit with a chronic illness. I have EDS/Ehlers Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome/POTS. I have just ordered a garmin and desperately want to get fit to hopefully improve my symptoms.
pedroscalls Feb 2021 1:33am, 11 Feb 2021 31,155 posts	0 pedroscalls Hi Pixiemumma, welcome to Fetch, I can't help there but no doubt there'll be lots of Fetchies along with good advise in good time.
Ness Feb 2021 8:44am, 11 Feb 2021 13,630 posts	0 Ness Hi Pixiemumma, welcome to Fetch. I also don’t know much about the conditions you have. Good luck with your training to get fit. I’m sure that someone on the site will be able to offer some advice.
Mandymoo Feb 2021 8:45am, 11 Feb 2021 11,130 posts	0 Mandymoo Hello and welcome. Sorry I cant help but am sure you will find this site really supportive.
EvilPixie Feb 2021 8:46am, 11 Feb 2021 23,041 posts	0 EvilPixie waves Hi like the others I can't help but you are in the right place! We have several fit medical fetchies who I am sure will offer help and we will all offer support
PenW Feb 2021 10:11am, 11 Feb 2021 2,199 posts	0 PenW Hi Pixiemumma. Welcome to fetch. I don’t have either condition but know a bit about them. Have you seen a physio who specialises in those conditions? Someone I know of with both found it helpful to see a one who was specialist in those conditions to help with exercises to build exercise tolerance and protect the joints. I hope you find some useful ways forward.
westmoors Feb 2021 11:23am, 11 Feb 2021 4,802 posts	0 westmoors Welcome to Fetch Pixiemumma. Sorry I can't offer any advice on those specific conditions. I have a different chronic condition, lymphoedema, which was diagnosed a couple of years ago.
TeeBee Feb 2021 12:14pm, 13 Feb 2021 7,369 posts	0 TeeBee Hi there. Just bumping this back up the forum in case there's anyone out there who can provide advice. I guess all I would say is don't try to do too much too soon. Stay well within your limits at first, until you learn more about what you can and can't cope with. Good luck!
GimmeMedals Feb 2021 2:50pm, 13 Feb 2021 19,832 posts	0 GimmeMedals Welcome to Fetch, Pixiemumma.
Night-owl Feb 2021 3:10pm, 13 Feb 2021 35,531 posts	0 Night-owl Welcome Pixiemumma Hope you get answers to your questions