Myasthenia Gravis
3 watchers
Jan 2022
8:53pm, 24 Jan 2022
First-time poster!!
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Spike52
Hi all! I’ve been a member of Fetcheveryone for some years now and forgot all about the site for a while due to my health I’ve still been training but not entering any data on here. Anyway I met a person up the park the other day when I was dragging my old carcass round my 5k route and we got chatting about Fetcheveryone. Well that gave me the jump to start plotting my data and a new enthusiasm to record my times albeit a little hit and Miss! My question, is there anybody out there with myasthenia Gravis. It’s something I have from the legacy of thymus cancer quite rare I’ve been told. I’ve lived with this for a few years now and it goes from hour to hour so training can be hit and Miss but saying that I do enjoy going for a nice run walk only 3 miles but thats my limit before I’m knackered. Is there anybody else out there in the same boat? I myself don’t like giving up if I can run a little that does me if I can swim or go to the gym that fine. So if anybody else has any advice I’d be happy to hear
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Jan 2022
9:00pm, 24 Jan 2022
19,221 posts
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Ness
Hi, Spike52. This has been mentioned in the forum before..... fetcheveryone.com/forum/myasthenia-61572/ |
Jan 2022
7:45pm, 26 Jan 2022
29,553 posts
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macca 53
Myaware.org is a good resource (disclaimer: Mrs macca used to work for them)
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Jan 2022
4:35pm, 29 Jan 2022
5,504 posts
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Iron_Mum
*waves to Spike* yep, I have MG, but am *almost* symptom-free after a thymectomy 20-odd years ago. For me it never really affected the major muscles too badly - it was mostly the throat/lips and upper arms. Couldn't smile properly for years, and had to rest my arms several times while trying to wash my hair. So not sure I can be much use, other than making you feel that little less alone! |
11 Jul
9:42pm, 11 Jul 2024
10,359 posts
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PeterFay
Sero negative generalised myasthenia since 1992. No thymectomy Essentially asymptomatic while maintained on Prednisolone. Started running in 2011 |
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