25 Jan
8:01pm, 25 Jan 2024
322 posts
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kaysdee
I’m sorry there is so much sad news here lately.
Things haven’t gone well for OH. He’d been in the temporary care home since emergency respite in October and had received an offer for supported living accommodation… until the MDT team meeting yesterday.
They’d support him living in a flat with a care package but said he is too unsafe to go outside alone. They can’t be confident that he wouldn’t leave and they can’t do community DoLS if you don’t have 121 care, so the only option is for him to stay in the care home permanently. He’s devastated, as am I.
Things are progressing for S20 for his supported living move - he will have a 24/7 care package, so that’s why it’s different for him. His best interests application is now finally with the court of protection, so as soon as they give the go ahead, he can finally move after a short transition period.
I’m just battered. I had to leave work today to comfort OH as he was naturally taking things very hard and intended to then wfh but only managed an hour before falling asleep for hours when I got home. I’m so tired. (S16 had his long awaited surgery earlier this month and he’s in casts/a wheelchair for 6 weeks. He can’t give the usual help he does for S20 and I have to get him to and from college each day on top of everything else. I feel like I need to sleep for a week).
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25 Jan
8:30pm, 25 Jan 2024
66,344 posts
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LindsD
I don't know how you manage. I'm not surprised you are shattered
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25 Jan
9:46pm, 25 Jan 2024
73,598 posts
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Lip Gloss
Hugs Dipps and Kay. Things sound so hard and stressful for you both x
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26 Jan
6:44am, 26 Jan 2024
6,884 posts
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Little Miss Happy
What a lot to deal with again kaysdee, no wonder you're tired. I guess time off for you isn't an option? Is there any respite available to help whilst S16 is recuperating?
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26 Jan
7:27am, 26 Jan 2024
2,586 posts
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CK2
You must be exhausted kaysdee. I had the same question as LMH about additional support with S20.
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26 Jan
7:35am, 26 Jan 2024
18,225 posts
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Mandymoo
That sounds exhausting for you Kaysdee
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26 Jan
7:38am, 26 Jan 2024
38,139 posts
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Ness
It does!
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26 Jan
7:43am, 26 Jan 2024
49,266 posts
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HappyG(rrr)
That's terrible ksd. Hope uou can get some respite soon. G
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26 Jan
8:00am, 26 Jan 2024
7,270 posts
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ThorntonRunner
Can't begin to imagine how hard that all is for you ksd (())
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26 Jan
9:50am, 26 Jan 2024
29,406 posts
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Serendippily
((Ksd)) so much stress and distresd
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