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27 Sep
6:00pm, 27 Sep 2024
8,649 posts
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Corrah
So glad the ambulance has turned up Snail.
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27 Sep
6:06pm, 27 Sep 2024
45,039 posts
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Ness
Glad an ambulance got to him.
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27 Sep
7:24pm, 27 Sep 2024
28,734 posts
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Lizzie W
18 hours?! I'm so sorry
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27 Sep
7:44pm, 27 Sep 2024
24,835 posts
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3M
18 hours is pretty grim. I do hope he isn't too badly hurt or upset, and that it hasn't set his other recovery back.
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27 Sep
8:44pm, 27 Sep 2024
27,437 posts
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Bazoaxe
First the good news. Mil had improved again tonight.
Now the bad, although she was improved, not long after arriving her trigeminal neuralgia appeared. It became very upsetting to watch. It was so bad she was trying to get out of bed and clearly would immediately fall. Senior nurses were dealing with another issue and took a while to come. What transpires is that the doctors have decided to stop her medication that controls the pain. Why they have done this is unknown. The nurses cannot do anything unless the doctor changes their prescription and there is no doctor back until 9am on Monday.
The nurses said they could administer some pain relief. We were asked to leave the room for a bit but we could hear the screams of pain. When we went back in MiL was still in pain but a bit more settled. When she was falling asleep we left.
The issue is that traditional pain relief is no use for trigeminal neuralgia. We know this and we made clear last Friday they need to to everything they can to give MiL the appropriate medication.
It is harrowing to watch and you can do nothing. Mrs Axe s not in a good place but what can we do. Her mum will suffer all weekend and even if they decide to resume the medication at nine on Monday, we know it takes many days or weeks even to get the pain back under control
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27 Sep
8:52pm, 27 Sep 2024
7,410 posts
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Little Miss Happy
That’s a shocking wait snail. So sad that the NHS has come to this. Also of course partly due to those who seem to think they are entitled to an ambulance when they could easily get a lift or a taxi or actually get themselves to a walk in centre. I was going to say their GP but we all know how difficult that is these days. I hope both your parents are ok after what must have been quite an ordeal for them.
Baz- I’m sure there should be an on call doctor they can get to prescribe. I wonder if they’ve stopped it to try to ascertain if it’s contributing to other issues (not that it makes it any less painful for MiL or for Mrs Axe to see). They should be able to tell you the rationale.
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27 Sep
9:04pm, 27 Sep 2024
27,438 posts
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Bazoaxe
LMH, you would think so, but we asked a few times and of different nurses. All said there is no doctor until nine on Monday.
What they seem to have done is give medication in liquid form given the challenges of taking orally. The pregablin and tegretol are not available in liquid, so have just stopped. There are notes on her file from the specialist to say never to change this without consulting him.
The irony is that before this kicked in, I am sure she would have happily taken whatever tablets you gave her. She is much better than ten days ago.
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27 Sep
10:00pm, 27 Sep 2024
70,018 posts
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LindsD
Oh no Baz. I'm so sorry. That sounds just awful.
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28 Sep
12:56am, 28 Sep 2024
18,128 posts
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Garfield
So sorry to hear the medication issues are a nightmare Baz.
Also sorry to hear of your issues Snail.
MIL is in the home, they seem to be treating her well but she seems to think that she's the centre of the universe. Hubby was amazed to see how entitled she appeared and thinks that she risks alienating people as time progresses. She likes using powder after washing but the home is asking that she uses unscented stuff as her Yardley Lavender powder is rather powerful in smell and the person helping her is very sensitive to strong smells. MIL doesn't seem to care about the care person's issues.
She was complaining that they were telling her what to do, move to different places and told hubby he didn't understand what it was like to be bossed around. Hubby laughed and said that he had a better idea of what it was like to be bossed around, having been in the army and reserves for a number of years.
We had a conference with all the people in the home who have been assessing her needs and they are learning some of her preferences and she's going to need to come to meet them partway, but being a rather wilful person, this could be interesting. The folks from the home are very nice and are making an effort, but MIL doesn't seem to see this or even acknowledge it much.
Sorry to rant...but I've already had a rant with my best friend here and I don't want to bend her ear too much or she'll think I'm a nightmare too!! 
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28 Sep
7:10am, 28 Sep 2024
70,024 posts
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LindsD
That's what the thread is for Garfield.
My Mum is the same
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