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Returning to running, thanks to being spurred on by cancer

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Steady Edina Dec 2013 1:46pm, 5 Dec 2013 16,366 posts	Quote Pin Steady Edina mrs Jigs I understand but doesn't that mean the person concerned wins? However as I wasn't involved I will respect the wishes of others
lak Dec 2013 1:56pm, 5 Dec 2013 315 posts	Quote Pin lak Well I have run out of options. My oncologist for my rare cancer doesnt want to give me the immune stimulating drug in case he kills me-I had bad colitis with it earlier in year. My cancer is stable in lungs and skin but 2 new liver lesions have appeared. Trying to get them ablated somewhere but as I m not curable I m not a priority. However I still run 30-40 m a week and cycle (although scanning and outpatients messes my schedule) i feel so well . In the past I got treatments for my cancer on IFRs individual funding requests, as there is no plan to treat my cancer it s to rare we have just used what has worked in similar situations in other cancers. However these in the NHS have to have funds. Normally common things are commmisioned and as I said in the past IFRs were used for rare diseases. Now these have stopped. I have no avenue of funding to purseue. I hope to get these 2 liver lesions ablated before christmas out my own pocket. I just cant see how I could cope if I ddint run. I go out feeling so tense and angry by the time I get back its all sorted and I have a plan. Its just so sad I have such a low disease burden and so much healthier than most people at 55 its wierd.
Steady Edina Dec 2013 2:19pm, 5 Dec 2013 16,368 posts	Quote Pin Steady Edina That must be very frustrating for you Lak if it wasn't for the cancer fund I wouldn't have access to Avastin
Mrs Jigs (Luverlylegs) Dec 2013 3:59pm, 5 Dec 2013 21,154 posts	Quote Pin Mrs Jigs (Luverlylegs) point taken Edina.
Roobarb Dec 2013 9:41pm, 5 Dec 2013 5,179 posts	Quote Pin Roobarb Tbh I'd rather have a new thread
Roobarb Dec 2013 9:47pm, 5 Dec 2013 5,181 posts	Quote Pin Roobarb I've started a new thread 'Cancer support thread' Can we all move there pretty please? xxx
Steady Edina Dec 2013 10:32pm, 5 Dec 2013 16,377 posts	Quote Pin Steady Edina Sure have you contacted fetch? I can't see a report button